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Vohn Mercer's avatar

Excellent newsletter as usual Emily, thank you for the energy you invested in it. 🤩

I particularly appreciated the excellent fatigue article. I found it interesting that it said that PEM "is more correctly understood as a physiological state in which all existing symptoms burn more fiercely and new ones ignite". For this exact reason, I am tending to talk more about PESE nowadays (post-exertional symptom exacerbation). I wonder if using this term, rather than PEM would better help friends/ relatives/ clinicians to understand/ accept/ believe. In much the same way as talking of ME, instead of ME-CFS and highlighting symptoms other than fatigue, seems to. I find this tends to cultivate a subtle shift in others' compassion that grows over time.

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